Participate in our studies:
Healthcare Study 2b
Nov. 2012 - Healthcare Survey results published in Journal of General Internal Medicine: Comparison of Healthcare Experiences in Autistic and Non-Autistic Adults: A Cross-Sectional Online Survey Facilitated by an Academic-Community Partnership.
Apr. 2012 - AASPIRE members K. McDonald and D. Raymaker presented AAIDD webinar Ethical Issues in Developmental Disability Research. View webinar, slides, & references
Jul. 2012 - We presented at this year's Autreat. Our presentation was called "Getting The Most Out of Healthcare".
Healthcare Toolkit – We finished the first of three studies to build and try out an interactive healthcare toolkit, and are starting on the second study. We still need lots more adults on the autism spectrum and supporters to take part in these studies. Please see the Toolkit Flier if you're interested in participating.
Healthcare Survey – We completed our survey comparing the healthcare experiences of autistic and non-autistic Internet users. The survey, unfortunately, confirmed our fears that adults on the autism spectrum experience important disparities in healthcare. View the press release, download the paper (PDF, ~220Kb), or read the paper online.
Internet Use, Community, and Well-Being Study – We completed data collection and are currently analyzing responses from a survey to better understand the relationship between Autistic identity, sense of community, and well-being in autistic and non-autistic adults.
Partnering with People with Developmental Disabilities to Address Violence and Health – We have been collaborating with researchers in Montana to look at the relationship between lifetime violence victimization and health in people with developmental disabilities. We're currently collecting data.