Apr. 2012 - AASPIRE members Dr. K. McDonald and D. Raymaker presented AAIDD webinar Ethical Issues in Developmental Disability Research. View webinar, slides, & references
Jun. 2011 - We received a grant from the National Institute of Mental Health to build and evaluate a set of tools to improve the healthcare of autistic adults.
Jun. 2011 - A paper about our use of Community-Based Participatory Research was published in Progress in Community Health Partnerships. Read the abstract or full text.
Healthcare Survey – We completed our survey comparing the healthcare experiences of autistic and non-autistic Internet users. The survey, unfortunately, confirmed our fears that adults on the autism spectrum experience important disparities in healthcare. Stay tuned for the final results which we hope will be published soon!
Healthcare Toolkit – We finished the first of three studies to build and try out an interactive healthcare toolkit, and are starting on the second study. We still need lots more adults on the autism spectrum, supporters, and primary care providers to take part in these studies. Please see the Toolkit Flier if you're interested in participating.
Identity, Community, and Wellbeing Survey – We are wrapping up our data collection on a survey to better understand the relationship between autistic identity, sense of community, and wellbeing in autistic and non-autistic adults.
Partnering with People with Developmental Disabilities to Address Violence and Health – We have been collaborating with researchers in Montana to look at the relationship between lifetime violence victimization and health in people with developmental disabilities. We're currently collecting data.
The Gateway Project – We continue to collaborate with the Gernsbacher Lab at the University of Wisconsin – Madison on the Gateway Project, a secure registration system for studies committed to inclusion, respect, accessibility, and community relevance.