AASPIRE has created a set of resources to help improve healthcare for autistic adults.
The full toolkit, including the Autism Healthcare Accommodations Tool (AHAT) is now available at www.autismand health.org.
June 2016 - We've published the main paper about the toolkit development and evaluation.
May 2016 - We've published a paper about the interview study that informed the toolkit.
Spring 2016 - Two new papers by Dora related to AASPIRE's process: autoethnography on being an autistic researcher and theory paper on intersections of CBPR and critical systems thinking.
Healthcare Toolkit – We conducted a set of studies to create and test a new Healthcare Toolkit to improve primary healthcare services for adults on the autism spectrum. We are excited to announce that the full toolkit is now available to the public at www.autismandhealth.org. Published papers are available about 1) the interview study that informed the toolkit; download the interview paper (PDF, ~233Kb); 2) the creation and evaluation of the toolkit; download the toolkit paper (PDF, ~480Kb). More papers to come.
Healthcare Survey – We completed our survey comparing the healthcare experiences of autistic and non-autistic Internet users. The survey, unfortunately, confirmed our fears that adults on the autism spectrum experience important disparities in healthcare. View the press release, download the paper (PDF, ~220Kb).
Internet Use, Community, and Well-Being Study – We completed data collection and are currently analyzing responses from a survey to better understand the relationship between Autistic identity, sense of community, and well-being in autistic and non-autistic adults.
Partnering with People with Developmental Disabilities to Address Violence and Health – We have been collaborating with researchers in Montana to look at the relationship between lifetime violence victimization and health in people with developmental disabilities. We've published a paper about the computer program we used to conduct the study, and a paper about measurement adaptation, and a paper about gender and violence. More results on their way soon!