The book generated from the 2010 Critical Autism Studies workshop hosted by Michael Orsini and Joyce Davidson is set to come out this fall. The book includes a chapter by Dora and Christina entitled "Participatory research with autistic communities: Shifting the system." See the publisher's site for more details.
Dora presented on leveraging the dynamics of science, policy, and community for systems change at the annual meeting of the Society for Chaos Theory in Psychology and the Life Sciences (SCTPLS). Specific examples of community-engaged research leading to systems change came from AASPIRE's work.
Dora and Katie presented on the Partnering with People with Developmental Disabilities to Address Violence project at the annual meeting of the American Association for Intellectual and Developmental Disabilities (AAIDD). They presented the results of the measurement adaptation and computer assisted survey instrument (CASI) development. They also provided a half-day workshop teaching others ways to better include people with developmental disabilities in research.
The Partnering with People with Developmental Disabilities to Address Violence project has completed data collection and moved onward to the paper writing and dissemination stage. A presentation on the project's Community Based Participatory Research process has been accepted at the AAIDD annual meeting.
Christina gave a keynote address to the Oregon Medical Association entitled "'Do Unto Others...' Doesn't Always Work: Lessons on Improving Healthcare for Marginalized Populations." A large portion of the talk focused on AASPIRE's work to improve healthcare for adults on the autism spectrum.
The print copy of AASPIRE's paper "Comparison of healthcare experiences in autistic and non-autistic adults: A cross-sectional online survey facilitated by an academic-community" was published in issue 28(6) of JGIM. A favorable editorial about the paper, written by David Mandell, was included in the issue.
Katie and Dora co-authored a paper "Paradigm shifts in disability and health: Towards more ethical public health research" to appear in the upcoming special issue of the American Journal of Public Health (AJPH) on the ethics of human subjects research with minority populations. We hope it will encourage researchers in public health to more deeply consider disability rights framing in research, and to conduct more inclusive and respectful research.
AASPIRE Co-Director Christina Nicolaidis has accepted a position at Portland State University (PSU) as Professor and Senior Scholar in Social Determinants of Health. AASPIRE will be moving its primary academic home from Oregon Health and Science University (OHSU) to PSU, although ties with OHSU will be maintained. Congratulations to Christina on her new position!