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APPROVED: Aug. 9, 2012

Help Improve Healthcare for Adults on the Autism Spectrum

AASPIRE has created a survey that helps people on the autism spectrum share personalized information with their healthcare providers. The information is meant to help healthcare visits go more smoothly. We are now doing a study to make sure that the survey works well.

You may be able to participate in one of the studies if you live in the U.S. and

  • You are an adult on the autism spectrum or
  • You assist an adult on the autism spectrum with healthcare appointments.

You would take the survey two times. Each time, it would take about 30 minutes. You can take the survey over the Internet, or, if you live near Portland, Oregon, you can take it in person. If taking the survey over the Internet, you have the option to have the computer read the survey questions and answers out loud. Adults on the spectrum can take the survey with or without the help of a supporter. It is important that you complete both surveys.

If you take part in the study, you will be paid $5 for the first survey and $25 for the second survey two weeks later.

two people doing an interview

To learn more, please contact
Marcie Tedlow at (503)494-1207 or studies@aaspire.org.

More information is also available at www.aaspire.org/healthcare, or take a short screening survey (Flash).

OHSU IRB #5580
Principal Investigators:
Christina Nicolaidis, MD, MPH, Oregon Health & Science University;
Dora Raymaker, MS, Autistic Self Advocacy Network