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Publications

dora and elesia standing in front of a poster about the healthcare study
Tools and Products ~ Papers ~ Presentations ~ Posters

Tools and Products

AASPIRE Healthcare Toolkit
Web Sitewww.autismandhealth.org
Autism Healthcare Accommodations Tool www.autismandhealth.org/ahat
Toolkit Press Release HTML
Toolkit Press Release PDF

Papers

Nicolaidis, C., Kripke, C.C., Raymaker, D.M. (2014) Primary Care for Adults on the Autism Spectrum Medical Clinics of North America. 98;1169-1191.
AASPIRE_PC_ASD_Med_Clinics_Accepted.pdf (~580Kb)

Nicolaidis, C., Raymaker, D.M., Katz, M., Oshwald, M., Goe, R., Leotti, S., Grantham, L., Plourde, E., Salomon, J. Hughes, L., Powers, L. (2014). Participatory research to adapt measures of health and interpersonal violence for use by people with developmental disabilities. Progress in Community Health Partnerships: Research, Education, and Action. In press.

Oschwald, M., Leotti S., Raymaker, D.M., Katz, M, Goe, R., Harviston, M., Wallington, A., Howard, L., Beers, L., Nicoladis, C., Robinson-Whelen, S., Hughes, R.B., Lund, E., Powers, L.E. (2014). Development of an audio-computer assisted self-interview to investigate vilence and health in the lives of adults with developmental disabilities. Disability and Health Journal. 7(3);292-301.

Raymaker, D.M., Nicolaidis, C. (2013). Participatory research with autistic communities: Shifting the system. In Davidson, J., Orsini, M. (eds). Worlds of Autism: Across the Spectrum of Neurological Difference (ch.7). University of Minnesota Press.

McDonald, K., Raymaker, D.M. (2013). Paradigm shifts in disability and health: Towards more ethical public health research. American Journal of Public Health. 103(12);2165-2173. Both authors contributed equally to this manuscript.

Nicolaidis, C., Raymaker, D., McDonald, K, Dern, S., Boisclair, W.C., Ashkenazy, E., Baggs, A. (2013). Comparison of healthcare experiences in autistic and non-autistic adults: A cross-sectional online survey facilitated by an academic-community partnership Journal of General Internal Medicine. 28(6);761-769.
hc1AsurveyJGIM.pdf(~220Kb)
Healthcare Survey Press Release HTML

Nicolaidis, C., Raymaker, D., McDonald, K, Dern, S., Ashkenazy, E., Boisclair, W.C., Robertson, S, Baggs, A. (2011). Collaboration strategies in non-traditional CBPR partnerships: Lessons from an academic-community partnership with autistic self-advocates. Progress in Community Health Partnerships: Research, Education, and Action. 5(2);143-150.
AASPIRE_CBPR_PCHP.pdf(~1.2 MB)

Presentations

Raymaker, D.M. (2013). Leveraging the dynamics of science, policy, and community for systems change. Paper presentation. Society for Chaos Theory in Psychology and the Life Sciences Annual Meeting, Portland, OR.

McDonald, K., Raymaker, D.M. (2013). Strategies for including adults with developmental disabilities in research. Post-conference workshop. American Association for Intellectual and Developmental Disabilities Annual Meeting, Pittsburgh, PA.

Raymaker, D.M., McDonald, K., Stack, E. (2013). Partnering with people with developmental disabilities to address violence: A community based participatory research project. Paper presentation. American Association for Intellectual and Developmental Disabilities Annual Meeting, Pittsburgh, PA.

Raymaker, D.M., Nicolaidis, C., Baggs, A., Boisclair, C., Kripke, C., Ashkenazy, A., McDonald, K., Erickson, K., Tedlow, M. (2012) Getting the Most Out of Healthcare as an Autistic Adult Autreat. Johnstown, PA, July 2012.
Autreat 2012 PDF slides (~484 Kb)

Raymaker, D, Dern, S, McDonald, K, Ashkenazy, E, Boisclair, C, Baggs, A, and Nicolaidis, C. Healthcare Outcomes and Barriers to Healthcare Experienced by Autistic Adults in the United States. 5th Scientific Meeting for Autism Spectrum Conditions (WTAS). Augsburg, Germany, February 2012.

Nicolaidis, C., AASPIRE and Community Based Participatory Research. Autism Now Webinar, February 2012.
View slides: http://www.scribd.com/fullscreen/81622507?access_key=key-1mux2naonuk7lkjr9h48
View webcast: http://cc.readytalk.com/play?id=f048do

Nicolaidis, C. Effective Partnering with the Autistic Self-Advocacy Community to Advance Intervention and Services Research. Ethical, Legal, and Social Implications of Autism Research Workshop, National Institutes of Health, Bethesda, MD, September 2011.
ELSI 2011 PDF slides (~1.5 Mb)
View webcast: http://nih.granicus.com/MediaPlayer.php?view_id=7&clip_id=367

McDonald, K., Kidney, C., Stack, E., & Patka, M. (June, 2011). Valuing inclusion: collaborative research with persons with disability. Symposia presented at 2011 meeting of the Society for Community Research Action, Chicago, Illinois.

Nicolaidis, C., Raymaker, D., McDonald, K., Ashkenazy, E., Dern, S., Boisclair, W.S., Baggs, E., Delaney, R., Way, R. “Respect the way I need to communicate with you”: Healthcare experiences of adults on the autistic spectrum. Oral abstract presentation. Annual Meeting of the Society for General Internal Medicine. Phoenix, Arizona, May, 2011.

Raymaker, D.M., (2011, March) Nothing about us without us: partnering with autistic adults to improve healthcare. Presented at Developmental Disabilities: Update for Health Professionals, San Francisco, CA.

Nicolaidis, C, Raymaker, D.M., (2011, March) Partnering with autistic adults to improve healthcare. Presented at the Psychiatry Grand Rounds, Oregon Health & Science University, Portland, OR.

McDonald, K.*, Raymaker, D.M., Perry, A., Patka, M., Kidney, C., Stack, E., Nicoladis, C. (2011). Including adults with intellectual and developmental disabilities in research: methods and ethics. Presented at National Multicultural Conference & Summit, Seattle, WA. *all authors contributed equally to the presentation

Raymaker, D.M., Ashkenazy, E., & Nicolaidis, C. (2010, October) Community-based participatory research. Workshop presented at the Family Medicine Education Consortium NE Region Meeting & Residency Fair, Hershey, PA.

Raymaker, D.M., & Nicolaidis, C. (2010, September). The dynamics of autistic-academic partnerships. Presented at the Critical Autism Studies Workshop, Ottawa, Canada.
CASW 2010 HTML Abstract
CASW 2010 PDF slides (~2 mb)

Kidney, C., Raymaker, D., McDonald, K., Boisclair, C., and Nicolaidis, C. (2010, June). Participation in online communities: exploring the impact of accessible communication. Presented at the Society for Disability Studies, Philadelphia, PA.

Nicolaidis, C., Raymaker, D.M. (2010, May). Strategies for effective collaborations with geographically-dispersed communities and people with disabilities. Presented at the Community Campus Partnerships for Health Annual Conference. Portland, OR.

Raymaker, D.M. (2009, May). Augmentative and Alternative Communication. Presented at the Interagency Autism Coordinating Committee Full Committee Meeting, Washington, DC.
IACC 2009 PDF slides and comments (~1.8 MB)

McDonald, K., Raymaker, D.M., Robertson, S., & Nicolaidis, C. (2008, May). Participatory action research with disabled adults: advancing scientifically sound, socially relevant, ethical research. Symposium presented at the American Association for Intellectual and Developmental Disabilites Annual Meeting, Washington, DC.
AAIDD 2008 HTML abstract
AAIDD 2008 PDF slides (~480 KB)

Poster Sessions

Nicolaidis, C., Raymaker, D., McDonald, K., Dern, S., Ashkenazy, E., Boisclair, W.S., Baggs, A., Delaney, R., Way, R. Healthcare disparities experienced by adults on the autistic spectrum. Scientific Poster Presentation. Annual Meeting of the Society for General Internal Medicine. Phoenix, Arizona, May, 2011.

Nicolaidis, C., Raymaker, D.M., McDonald, K., Ashkenazy, E., Boisclair, C., Dern, S., Baggs, A., Delaney, R., Way, R. (2011, February). CBPR to improve the healthcare of autistic adults. Poster session presented at the 4th Scientific Meeting for Autism Spectrum Conditions (WTAS), Berlin, Germany.

Nicolaidis, C., Raymaker, D.M., McDonald, K., Ashkenazy, E., Boisclair, C., Dern, S., Baggs, A., Delaney, R., Way, R. (2010, October). CBPR to improve the healthcare of autistic adults. Poster session presented at the Family Medicine Education Consortium NE Region Meeting & Residency Fair, Hershey, PA.